Adams fundoplication went ahead as planned (3hr operation conducted via keyhole surgery). It was a bigger operation than we had anticipated and we were told just before the surgery that he would need to be on the high dependency unit after surgery for close monitoring. The following day we expected to be moved onto the surgical ward however Adam was displaying Dystonic movements (a neurological movement disorder) and was given Morphine and Diazepam to elevate the symptoms. This proved successful so on day three we were moved onto the surgical ward. He was kept on the Diazepam for a few days which was great as we’d never seen him so settled and happy!! We were finally discharged six days after surgery in time for Easter and his 2nd birthday. On Easter Saturday we went to Adams friend Lawrence’s birthday party at White Post Farm nr Mansfield. We all had a lovely day, Adam was extremely brave touching a snake, lizard and new born lamb. Easter Monday (Adams birthday) afternoon was spent with nanan Margaret (Salt) for a joint birthday tea with his cousin Megs. Up to this point Adam appeared to be making a good recovery. The 5 surgical wounds on his stomach were healing lovely and the only issue we were having was settling him at night. This was expected as the surgeon (Sean Marvern) had indicated that the average healing time for this type of surgery is 8 weeks. Unfortunately, Adam picked up a cold and stomach upset making nights even harder than already experienced, both Karl & I were starting to wonder whether we would sleep again!! The downside to a fundoplication when you have a stomach upset is you can no longer vomit which makes overcoming the infection a longer process.
On the 19th April we held a surprise joint birthday party for Adams Nana & Grandad Leverton at Hackney House In Barlow. To show our appreciation and thank them for all their support. Plus to recognise grandad’s 65th which we didn’t celebrate last year due to Adam being in hospital, and grandads recovery from his quadruple heart bypass November 2008.
We are now 25 days post surgery, the sun has been shining for the past week and Adams infections finally seem to be getting better. I don’t want to rock the boat but we have had two good nights, long may it continue. Adam is due to see his paedeatric consultant, dietician and physio on Monday for a review of his medication, feeding and general movement. We are hoping that his reflux medications can be reduced now he has had the stomach tightening surgery.
Added some new pics so please check out the photo gallery.