Poor Adam has spent the past 2 weeks very poorly in hospital with a serious bout of bronchitis. He was on oxygen for the whole of his stay and only came of it yesterday (6/10/08). The hospital wanted him to be without oxygen for 24 hours before they would discharge him which he has thankfully managed and we are now back home.
Adam started to become unwell nine weeks ago shortly after having his MMR jab so we put it down to that, however he slowly got worse and we ended up in hospital for a couple of days over the August Bank Holiday weekend. Whilst there he started with an enormous mouth ulcer! Over the following weeks he still wasn’t too happy, being sick and not sleeping and the ulcer continued to grow. After numerous visits to Adams GP the ulcer didn’t heal and we ended up using the open pass for the hospital and taking Adam up there to see if they could suggest anything. Whilst we were there the doctor checked in his ears and throat and advised that it looked like Adam may have a viral infection brewing. She also asked somebody from the Maxiofacial (MF) unit to come and look at the ulcer. The MF lady wasn’t too helpful and said it needed time and to try and stop Adam chewing it by giving him a dummy. We tried explaining that he won’t use a dummy but she didn’t seem to understand and said she would see him again in 10 days.
Over the following week Adam gradually got worse and on the night of the 24th September his temperature shot up to 40 and he was in a real state. We rushed him straight up to the hospital and after several tests a chest xray showed he had bronchitis and he was put on a saturations monitor and oxygen to assist with his breathing as he was really struggling. He was in a bad way during the first week, having chest physio and suction to help clear his secretions. He also started doing an odd movement continuously waving his left arm and arching his body in spasms for almost three days which was worrying. One doctor thought that he may be fitting and therefore arranged an EEG, thankfully it showed no unusual brain activity so we think it was muscle spasms bought about by the pain he was in. It was a very tough time for all of us but thankfully he has got through it and is now much better. Unfortunately, the dreaded ulcer remains and has started to migrate to the front of his lip. We had the MF doctors in again whilst in hospital but they still can’t come up with any solution other than to stop Adam chewing it. We again explained that we can’t prevent him from sucking/chewing his lip, we are seeing the MF doctors in a few days time so will update then.
We would like to say a huge thank you to all the doctors and nurses on Nightingale who have looked after Adam, to the Grandparents for their daily visits allowing us to have some time out and also to Denise for popping in with the really nice bear for Adam and the food for us. X