As usual i’ve been rubbish at updating so will summarise the highs & lows of last 5 months in one post…
Holiday in Poole – 24th July
For his second holiday we took Adam to sunny Poole for a week at a Haven holiday park. We shared a caravan with both Adam’s nannas and his Grandad and our next door neighbours were Uncle Craig, Auntie Amanda and cousins Holly & Max.
As before when we stayed in a caravan at Filey Adam was really good, sleeping through which is a rarity. He was also happy and settled during the day, not sure if its staying in a caravan or the sea air but being on holiday by the sea definitely suits him!
Although there was not much in Poole there is plenty to do/see in the surrounding area and the weather was kind to us having only one day of rain. It was a great holiday park and a good base to visit Bournemouth, Weymouth, Swanage and trendy Sandbanks. After a couple of successful holidays in this country we are now looking into maybe taking Adam for his first holiday abroad March/April time so watch this space.
Leg Operation -4th September
Due to Adam’s muscle tone problems, as he grows and can’t move his legs or weight bare they are slowly becoming deformed. After consultations with an orthopedic surgeon it was decided he would benefit from corrective surgery. This involved his tendons behind his knees and at the top of his feet being cut, releasing the tension and allowing for his legs and feet to be straightened. During surgery his legs were set into an A-frame cast and Botox was also injected into the areas that had the most tension to help relax his muscles.
He spent just over 4 weeks in the A-Frame cast during which time we tried to carry on doing things as normal including a trip on the Sheffield Wheel (see picture above). Once the cast was removed he was then fitted with some cute ankle casts (which Kerry called his Ugg boots) He had to wear these for a further two weeks pending receipt of a pair of removable splints. Initially the surgery seemed to be a success but his legs and feet have unfortunately started to revert back to how they were before the op. The first pair of splints were ill fitting which didn’t help to keep Adams ankles/feet in the correct position. After several trips to the hospital for further measurements and moulding he finally has a pair of splints that fit correctly and he wears these for a few hours a day, hopefully these will help over time.
Adam’s magical Grandparents!
Thanks to Adam’s Nanna & Grandad Kerry & I managed a relaxing week away to Fuerteventura. We struggled with the thought of leaving Adam behind for the week but safe in the knowledge he was in the best hands plus knowing it would do the pair of us the world of good we went for it. We booked a last minute all inclusive deal to the Hotel Barcelo Fuerteventura for some winter sunshine. We had a brilliant time, the hotel was fabulous, even the evening entertainment was great!! Although the weather could have been better it was good to have a week of sleeping through, cooked breakfasts beer on tap and generally just chilling out.
After a bug free summer comes the winter!
Summer was a good time for Adam, with no bugs floating around he avoided being admitted into hospital (apart from for his leg op). Unfortunately winter has been a different story with 3 visits already.
On the first occassion he was admitted for three days, the second was for just one day and then six days over Christmas. Adam had been unwell for a few days leading up to Christmas and unfortunately deteriorated rapidly on the Wednesday evening before Christmas Eve. As we have an open pass onto the children’s ward we took him straight up on Christmas Eve. Over the following three days he was very ill with a bad chest infection and ended up on I/V antibiotics, oxygen and hourly nebulisers. Although it was our worst nightmare being in hospital over Christmas all the staff were great and made it a fun and happy place to be. Adam had a big sack full of really nice presents left at the bottom of his cot and all parents were served a Christmas dinner followed by a party tea in the evening. We were also lucky enough to be in one of the side rooms off the ward with en-suite. This meant Kerry and I could stay overnight although we only managed Christmas Eve, Christmas Day and Boxing Day before we started doing alternate nights as it was squeeze in a single bed! Adam was discharged armed with oral antibiotics in the evening of Tuesday 29th December, just in time for Kerry to go back to work. The lack of sleep took its toll on me as I started with a sickness bug on the Wednesday followed by a streaming cold!! We had a belated Christmas day with all our presents and a big dinner on New Years Day, Adam was a very lucky boy with enough toys and clothes to last him all year.
We have had a lot of support over the past month from family and friends and we want to thank you all. Our friends Neil & Kate visited us in the hospital on Christmas day and Simon & Rachel made a lasagne for us the evening we were discharged from hospital delivering it to our door ready to eat.