On the 7th December Adam went into Sheffield Children’s Hospital for 3 separate procedures under one general anaesthetic. This consisted of tendon releases to both legs, capping of four saliva glands and a bronchoscopy.
The tendon release was his third and he is back in an a-frame cast for 5 weeks. The saliva gland capping is to stop his drooling and the bronchoscopy was a deep examination of his airways and lungs to see if there was any damage that may be causing him problems.
He was in surgery for four hours and when he came round he was really poorly. He was taken back up to S1 ward where we expected to stay for just one night, unfortunately it ended up being a lot longer.
This is where our unbelievably bad experience on S1 ward starts, never have we experienced such a dirty and badly nursed ward in all our stays in hospital.
Once on S1 it soon became apparent that something was wrong with Adam as he was deteriorating even after having paracetamol and ibuprofen. We kept asking for Adam to be assessed by a doctor with no success. This was shocking considering he was post surgery and has numerous health problems. We also asked several times for a sterile pot to catch some of the discoloured secretions Adam was producing. Eventually, we were given a sick bowl and told to use that. We told the nurse that this surely wasn’t sterile but she insisted that this was the way they now do it. We knew she must but wrong but we collected a sample in it anyway and when a doctor finally arrived several hours later we passed the sample to him. He looked perplexed and couldn’t undertand why were given this and said we needed a sterile catch! He insisted Adam immediately be sent for a chest xray and prescribed him Morphine as the other pain relief wasn’t having any effect.
The xray showed signs of a bad chest infection, he was prescribed IV antibiotics which were due to be started immediately. We waited for the nurse to administer them but she never appeared so we went to find her. When asked why she hadn’t started the antibiotics she said that as he had missed the 2pm slot he wouldn’t be able to commence them until 10pm. As we knew this must be wrong we asked to see the doctor again, he was amazed that we’d been told this and insisted that the antibiotics be given immediately.
As Kerry was breast feeding Isla she couldn’t stay on the ward so I had to live on the cramped ward for 6 awful days, the toilet and shower room were disgusting and other than a quick floor clean around Adams bed I never witnessed anything else being cleaned. Not once did anybody offer to change Adam’s bed so we had to find the bedding and do it ourselves. Kerry even ended up removing some of the stitches in Adams groin whilst a nurse watched. Numerous other incidents happened whilst on S1, due to the distinct lack of post operative care we felt it necessary to put in an official complaint which is currently under investigation.
It was such a relief to finally be discharged home, to be honest Adam should have stayed in hospital a bit longer but the care and cleanliness was so bad we knew he would be better off at home.